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Stop what your doing

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Paul Shuler

07-13-2006 16:17:32




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Whatched one of my best friends bury his 19 year old boy today. My heart is still broken over it. He died Sunday AM in his sleep. Lay down your wrenchs, your tractor will wait.Take a night off the computer and go love you kids. Take the time to tell them how much you love them. Talk to them about drugs and alcohol. If your kids are older and not at home go call them know. Pour your heart out to them. If your not speaking for whatever reason end it tonight. Life is short and we are not promised tommorow. They don't have to be perfect, they just need to know you love them. They are a blessing from God even though they can break our hearts.

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dhermesc

07-14-2006 05:46:12




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 Re: Stop what your doing in reply to Paul Shuler, 07-13-2006 16:17:32  
Been there, started making funeral arrangements for my 6 year old last January after he was in a coma for a week. The day I bought the plot he started to recover. Third time in two years he's walked out of a PICU. I don't know how many times more he's going to get to do that.



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DJL

07-14-2006 08:30:26




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 Re: Stop what your doing in reply to dhermesc, 07-14-2006 05:46:12  
Dhermesc-
Can you give me more details about your 6 year old. The reason I ask is, my wife and I buried our only child in August of 2003. He was almost five years old. From birth to age 2 1/2 our son was a perfectly health, normal child. In Feb of 2001 he was diagnosed with an unexplained brain tumor. After countless surgeries, chemo, siezures and blood transfusions he lost his courageus fight. You guys would have loved him. He was more of a tractor guy than I am! Nothing made him happier than getting out our restored JD B and driving around the block a time or two. I can relate to your experience as my son had multiple times where the physicians thought it was over and after a couple days, he would walk out of the PICU. My heart, thoughts and prayers go out to this family. I can't think of anything more difficult than losing a child. I still miss our son.
DJL

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dhermescc

07-14-2006 09:29:09




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 Re: Stop what your doing in reply to DJL, 07-14-2006 08:30:26  
Much like your son ours was "normal" until he hit three years old, then we noticed he would occasionally have an eye twitch. After a single day of testing he was diagnosed with epilepsy. For the past 4 years we've been in and out of hospitals while trying to carry on as normal of life as possible. He suffers from small seizures that can build to grand mal seizures. He displays Parkinson’s like tremors and symptoms, difficulty talking, walking, eating etc, but his mind remains clear which makes the effects all the more devastating. According to his EEG he can have as many as three seizures a minute and at times it hard to even tell when they start and stop. There are days when he can not walk or talk because he is having to many, then there are days he seems like a normal 6 year old that hates to wear his helmet while riding his bike.

Right now he has a VNS implant, he's on 4 drugs (already tried 15 others) and he's on the KETO Diet. He has improved greatly since January and spent a week at the Cleveland Clinic in June for further evaluation. Doctors have no idea why he has epilepsy since it's not genetic nor has any test shown an abnormality of any type.

I can only imagine the pain you and yours have gone through and wish to express my sympathy. These little guys can be so tough and endure treatment that would leave a grown man begging for mercy.

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MACE

07-14-2006 15:00:31




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 Re: Stop what your doing in reply to dhermescc, 07-14-2006 09:29:09  
Have you talked with any of the doctors down here at Emory Hospital in Atlanta? They have a real good reputation for dealing with seizures and things of that nature. My wife had a grand mal a couple of years ago on the night of December 26. Scared me to death. She has epilepsy and will be on a drug that is used to control that for the rest of her life. Never walk out of your house without saying a prayer for the safety of your loved ones and yourselves. You never know when it may be the last.

MACE

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dhermesc

07-14-2006 15:31:07




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 Re: Stop what your doing in reply to MACE, 07-14-2006 15:00:31  
My wife and I did some research, the Cleveland Clinic in #5 in the nation for Neuro treatment, and #3 in the nation overall in general treatment (only Johns Hopkins and the Mayo Clinic rate higher). It was only luck that we got in when we did. Now that he's officially a patient of theirs, he can be readmitted with a day or two notice. Short of winning the Powerball or suddenly becoming famous I don't think we are going to do any better.

Thanks for your concern.

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Jimmy King

07-14-2006 01:07:52




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 Re: Stop what your doing in reply to Paul Shuler, 07-13-2006 16:17:32  
Paul, I have lost my Father , My Wife, but I cannot even imagin losing a child no matter their age My Uncle that is gone now lost his oldest daughter when she was 39, and he never did get over that. I have two step daughters that I love just as much as I love my son.



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Wayne Swenson

07-13-2006 20:48:26




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 Re: Stop what your doing in reply to Paul Shuler, 07-13-2006 16:17:32  
My prayers are with the family; there is not much a person can say now except to keep the memories alive in your heart.



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Michael Soldan

07-13-2006 19:18:18




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 Re: Stop what your doing in reply to Paul Shuler, 07-13-2006 16:17:32  
Paul, I can't think of any thing more devastating than losing one of your children, it is truely a heart break, for all who knew this boy. His parents will be devastated, do all you can to comfort them, your message is appreciated by all parents on this forum. I will say a prayer, you take care and do what you can for your friend...Mike in Exeter Ontario



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newpuller

07-13-2006 16:57:55




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 Re: Stop what your doing in reply to Paul Shuler, 07-13-2006 16:17:32  
Wow, terrible news. I'm sorry to hear that. I wish I had kids so I could follow your advice. My prayers are with the family of the young lad.



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Nebraska Cowman

07-13-2006 16:56:08




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 Re: Stop what your doing in reply to Paul Shuler, 07-13-2006 16:17:32  
Oh yeah, Life is not about "stuff", it's about people.



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newpuller

07-13-2006 17:00:25




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 Well put Cowman in reply to Nebraska Cowman, 07-13-2006 16:56:08  
It seems we forget that once in a while.



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