I'm glad that you brought this topic up. Sometimes I think that I must be the "Lone Ranger" with Lyme, but I really know better. Lots (thousands) of people get this disease, but do not get an accurate diagnosis. The tests are very flawed with a high % of false negatives.
I have had Lyme since 1985 (age 39 then) and it has majorly affected my life. I ended my teaching career at age 53 because of the nervous system affects that made me far overly sensitive to noise, light, and many other stimuli. I was deemed by administration as too cranky to be dealing with students, although I had the honor of having some of the most successful students of physics in the history of the school district. Maybe I was just too cranky towards incompetent administrators!
The Lyme disease affects the joints, spine, muscles, tendons, coordination, sometimes heart, glands, and I had the brain and spinal cord infection. We were making medical progress up until the early 90's when some source of political force kicked in and brought most true Lyme medical research to a complete stop. Doctors who were very knowledgable in treating Lyme were put out of business on trumped up charges or minor technicalities...nation wide. This is still going on. Truely there is some kind of conspiracy, with some members of the CDC involved.
Makes a person wonder if we are being sacrificed to help the govt plundered Social Security system remain a bit more solvent. There is no known proof of that theory....yet.
I am a member of a Lyme Disease support group in MN, and have seen hundreds of people needing medical care not get anything except a prescription for prozac and ibuprofin. A well paid medical researcher at our state university gave me exactly that prescription for Lyme. What a fraud!
The best thing for all of us, is to take whatever measures necessary to avoid the ticks and hopefully avoid this dammed disease. Be careful out there!!
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